7 year old Konner Anderson has Hereditary Spastic Paraplegia (HSP). Due to this condition, Konner is in a study to monitor his gait and HSP progression. Unfortunately, the study is located in Texas hundreds of miles away from his home in Utah and Konner’s family was unable to afford the plane tickets to get him there this year.
Charity Air Ambulance stepped in and covered the cost of the plane tickets so that Konner and his mom Jessica could travel to Texas and focus on Konner’s health. While this isn’t a service we normally provide, we believed in the need for this young boy to get to his specialist. Konner spent a few days in Texas and Jessica made sure that Konner was able to have some fun in between the hours spent in the study. While they were there, Konner was able to participate in a half marathon where a runner he was paired up with pushed him in a stroller through the race. On his flights, Konner was also able to check out the cockpit and talk to the captains. “The flight was amazing! It was much better than his ‘make a wish’ trip.” Jessica said.
Konner’s doctor believes that at the time, there isn’t much that can be done for Konner but is hopeful that in a few years he will be able to participate in gene therapy to hopefully correct his HSP. Until then, Konner will continue to go to his specialist every 18 months to monitor his condition. We are so happy to have been a part of this amazing young boy’s journey and we can’t wait to see what else is in store for him!